The local minor league team is a great outing spot for many reasons, including: -nobody gives us a hard time about taking the stroller in instead of his wheelchair (this is probably a minor detail but when ya need a nap…. Ya need recline options!) -no over the top security searching through his medical bag touching all of his Gtube stuff having no clue what it is -take your own snacks and special Ryker drinks -park close to the entrance -not super crowded -a bounce house for big bro! #maytheforcebewithyou #1fan #stickaforkinme #ilovehotdogs #littlesleepies #purasyndrome
Rare Disease Day 2022 is tomorrow! Wear your jeans (or blue 😁) to support Ryker and all of his rare PURA friends worldwide 💙 Your support of Ryker and the PURA Syndrome Foundation means more than you know!
Just a few days ago, another of Ryker’s PURA siblings, 5 year old Jenna, gained her angel wings. Like Ryker, Jenna has the BEST siblings. Be thankful for your family, and consider giving to Jenna’s family in their time of grief, which is always unimaginable, but perhaps even more amplified by the holiday season 💔💙😢